When I grow up!

Having a preemie is a roller coaster most people would never stand in line to ride, but my life has been on this ride two times as most of you know. Yes I wished I could have gone full term with both of my miracles but that’s just not what god had planned. Delilah has been home now for 2 months 1 week and 5days yet it seems so much longer! There are days I forget what it was like to be in the NICU but some days I’m flooded with the memories and I thank god everyday my teeny tiny survived all she did.

I wish there was something I could do for the staff of the NICU at St.Joe’s I know they were doing their jobs but them doing their jobs saved my baby! They gave me something I was told I never would have and now I have 2 beautiful tiny girls who melt my soul! Anyone who has had to spend time in the NICU (in any NICU) can tell you, they felt more alone in their lives. Even when family and friends and amazing support systems surround you, you feel alone and helpless I have friends who have been in the NICU (I met two very close friends in there) but you still alone every body goes through something so different and scary but all you can do is be there for each other.

Delilah is doing so amazing! She makes me laugh her little body wants to stand up and dance around like her big sister Aria, but she’s still learning to hold her head up but once she does I think she will go nuts in the bouncer saucer! I cant wait for next summer to see my two girls playing together!

Recently I have been thinking about my life and what I want to do with it (sad I know I’m almost 33 and I still don’t know what I want do when I grow up lol) but I think I have figures it out but I don’t even know where to start, I want to help the parents well families who have been in the NICU. I would love to have a gym for kids (like a gymbore) but so kids who are smaller then most or have special needs, I want a place where they don’t see there walker or wheelchair, I want them to be able to play and grow. I also want the parents, grandparent and other siblings to have other people in their situation to talk to. Maybe not talk about what’s going on with the kids but just new friends.

I have seen so many parents with sick kids taking them to a billion appointments a month they have no time for friends and sometimes I feel the other kids feel like they are pushed to the side, this would give them a place to be with other kids in their situation, and maybe have therapist (consolers) to talk to.

But how do I do this? Where do I even start? Does anyone know?