somedays..................

Holy moly, I just realized Aria turns 2 in a month (as of tomorrow) I think I need to get on the ball and plan a party! It’s going to be a crazy busy summer we have Aria’s 2^nd birthday 2 or 3 wedding’s moving the end of August (that means A LOT of packing) Delilah coming home, we’re both going to be working and our house warming come meet Delilah diaper shower once we’re settled and whatever family/friend get together there happen to be thrown in the mix.

Delilah is bouncing between 800 and 830 grams she doesn’t seem to want to go past 1.13lbs right now. So can you all please pray she continues to gain weight at a good pace. So far she’s just coasting nothing has really changed with her other then weight.

Aria started saying Delilah’s name today and it’s so freaking cute, it sounds like Nahnah I can’t wait to have both my girls in our house. It’s so hard only getting to see Delilah twice a week since Rick is working I have to wait for a babysitter (usually my mom on a day off) so I can go, plus only having one car sucks but we should be able to fix the transmission on the Suburban soon I hope. I’m worried people think I don’t care about my daughter since I can’t be there all the time. But that is so not the case, if I could be there everyday I would. If I could be there more the once a day I would but with gas prices only one trip is allowed.

Hugs and love………………..

Out the nose

I know I freak out to easy with the things going on with Delilah but it’s very hard to deal with some of the stuff they tell you is going on. I called this am to see if they got the cultures back so we know what the infection is, (which that hasn’t come back yet) but I was told Delilah had food coming out her nose and mouth. This has never happened with her before so it worries me a lot. She has a feeding tube into her mouth and she did not pull it out and yes that happens, again not with her though lol so I am waiting on rounds to get done so I can call back and see if anything has changed. She has her events a lot more towards the end of her feedings which is when the spitting up happened this morning.

Now Aria on the other hand that little crazy girl pulled her feeding tube out many times while in the NICU, and once she got home she would have formula coming out of her mouth and nose while she slept. Only for me though NEVER for Rick which was annoying, I would freak out thinking she was having a seizure in her sleep (Mom and J had them) all we had to do was change her formula and she was great. I hope it’s something simple with Delilah.

She has been doing so good I’m just scared she’s declining, the nurse’s and Dr.Martin think I’m crazy cause I get scared from everything going on with her but though them it’s nothing since they see worse and she shouldn’t really be where she is for her size and age. She’s an amazing little that’s for sure.

Oh one fun thing I have been dealing with since Rick has been back to work is Aria’s fits! There a blast I think they’re worse for one simple reason, I put up with them Rick never did. She throws a fit when I give her food, no matter what it is she screams and cry’s no no no nonooooo but I learned something today and it might be kind of mean. Put her butt in the high chair with the food and walk away, not out of the house or anything but ill do dishes, fold laundry you know just go about my business and not really pay attention and she stopped and ate her food. TADA I can be taught hahah!

So today Delilah weight 810 grams, 1.13lbs YAY! The echo came back clear, so no more blood clot double YAY, they changed her feedings to 10ml for an hour then off for 2 hours to hopefully give her enough time to digest her food. So far they believe the infection is just a staff infection, and the antibiotics she’s on will do the job.

So prayers this infection goes away fast and stays gone, and that it doesn’t set her back in feeding’s or weight gain.

Hugs and love

Tough cookie

I got a call from the NICU and whenever that happens you hold your breath and try and figure out the tone in their voice. They found out Delilah has another infection, but we're not sure what it is yet they have to wait for the culture to finish growing to k now what it is. They are treating her with antibiotics and will change them once they know for sure what she has.

Delilah now weighs 760-grams, that's 1.11lbs thay had to up her to 2 liters of oxygen casue she keeps having "events" which means she has trouble breathing. she is still at 5ml feedings every hour. so other then the infection she is doing great, and dosent even act as if she's sick.

I have a tough little cookie :)

Hugs and love!

Giggles and monkey noise's

I wish I were better at punctuation and spelling but thank goodness for spell check right? Lol I also wish I could type without looking at the keys, I know I can but it takes so dang long and I make so many mistakes, I just get sick of going through and fixing them =) plus when I try and type with a 2year old on my lap I’m really looking at the keys to make sure her little fingers are not typing away with me, cause well that’s what Aria does.

I know I don’t talk much about Aria on this blog cause when I first started it; it was about Delilah my newest micro preemie. But Aria was also (or should I say is) a micro preemie; she was born at 30 weeks weighing 1lbs 15.3 oz and was 13in long. She is now 23 months old, well June 13^th she’ll be 23 months. I can’t believe July 13^th she will be turning 2!

Aria July 13th 2009 this is when she was born.

When Aria was born we were very blessed with no problem for her other then feedings. She was in the NICU for 6 weeks and just need the feeding tube for a little while. She was small for her age and still is lol I find it very amusing she wears 12-month cloths at 23 months when I have friends with 6month old kids bigger haha.

Today was a rough day for Aria and I, not only has she had to get use to when I was in the hospital now she is getting use to Rick working and for the last 2years it has been the 2 of them home while I worked or went to school. Plus she’s teething I feel so bad for the little chick I wish she could tell me where it hurts but I think she’s confused. And as I type this she is in her bed saying HI, giggling and making monkey noises at her mobile light on the ceiling it’s to freaking cute. She is so annoyed with her teeth she didn’t even want to play outside today =(

Aria loves looking at pictures of her sister Delilah she knows she’s a big sister and will kiss the pictures of Delilah and hug her through the phone =) I tell Aria all the time Delilah looks just like her just darker hair, but Delilah’s hair has started to change color a little it looked blonde to Rick and red to me so we shall see.

When I called to check on Delilah today she weighed in at 740grams! That’s 1.10lbs woot woot she’s moving up on the scale! Her feedings were at 4.5ml every hour and at 3am they will be changing it to 5ml’s every hour. They had to put her back up to 30% oxygen at 1liter instead of 25%, which is fine I can handle that =) she is getting an echo to make sure the blood clot in her heart s smooth or gone away. She is doing great and I can’t wait to go see her tomorrow and give her lots of love!

But for now I should go see what my crazy hyper moody Aria is doing and why she isn’t going to sleep. Wish me luck hahaha!

Hugs and love

Aria playing with water! She is 23 months old in this picture.

Sassy pants

Delilah is little miss.sassy pants today lol, she was throwing fits for her nurse every time she went into her "condo" (isolate) to do anything today. She just wanted to be feed and left alone, I was just told she would hit and scream at Kelly (our nurse today).

Delilah is currently weighing 720 grams 1.9lbs, at 3am they are increasing her feeds to 4ml and taking her off the fats and she is currently at 25% oxygen at 1liter.

I know alot of this stuff sounds foreign to everybody reading it and it's hard to understand, i mean hell this is my 2nd time going through having a preemie and i dont get it all the time. I'm sorry I don't know how to explain it better but I'm not medically smart lol I tell my nurses to dumb it down and I don't write anything down and I really should hahaha I always think i"ll remember everything I'm told but those who know me, know i forget where i put my phone when I'm holding it.

I have a few people ask if they can buy cloths for Delilah yet and I have to be very very honest with everybody and thank those who have been super patient. The reason we told people not to buy anything at first was we were super scared she wasn't going to make it. She was born very very sick and super tiny, we had some very scary calls that I toned down on here I don't have this blog to scare people or make them feel bad for us and our situation I have this so people know whats going on with Delilah and I don't have to remember everything 100 times. We are still telling people to hold off on buying cloths since we don't know how big she will be when she comes home, or what size she'll be for what season. If you have hand me downs you want to get rid of ill gladly take those, I just want people to spend a ton of money (well not yet anyways lol).

Another great thing that has happened for us Rick is working :) He is helping a friend of his doing exterminating stuff, his friend needs all your prayers he recently had a stroke and has had a few set backs so please pray for him, also please keep praying for Delilahs friend Cheyanne and her lungs.

I truly pray none of you reading this ever has to go through having a preemie baby (some of you reading already have) it is a very tough road but as long as you  are patient and listen to your Dr's, nurses, pray and have a great support system then you will do fine and if anyone every has to go through this I'm always here for support. It's harder then people think but again as parents we're just along for the ride.

Hugs and love

p.s please pray Delilah keeps gaining weight! It's funny I pray to lose the weight, and pray my kids gain some weight lol

Another picture Dr.Martin took of Delilah with her ring on. remember this is a size 7 women's ring and is that big on my little peanut! but this little girl is doing amazing thing's and will do even greater thing's in life :)

another day

I need to vent a little bit I am very jealous, when I was pregnant alot of my other friends were (and still are) pregnant, well some of them have started having their babies and i am very jealous of them having full term kids. Some of them complaine about not sleeping and fussy baby stuff when all I want is for my little girl to be home with me and weighing alot more. But this is my life, I have very small childern with minds of their own and dont listen when i ground them to their womb.

I'm not trying to complaine it's what it is and sometimes i have to get thing's out so there it is.

Delilah gained 40 grams since ysterday so she weighs 1.8oz now :) she also had to have another blood transfusion today due to how much blood they take from her. She is tolerating her feeds really well so they went up tp 2ml every hours for 5 hours and an hour off.

Dr.Martin took this picture for a fund raiser they were doing for the NICU waiting room, this is Delilah's hand next to a size 7 womens ring.  

Needs to get a little bigger

Delilah is doing wonderful :) She is eating 1.5ml every hour for 5 hours, she is on 24 calorie formula and hopefully they stop trying to high protein formula right now (she doesn't tolerate that kind well at all) They changed her from the high flow cannula to the regular conventional cannula this one has less humidity, and they can go lower then the 1liter of oxygen she is currently getting.

The Dr took out her suture in her back from surgery yesterday, and the hole from the chest tube is looking good. Today was a lot of the same, she is bouncing between 20grams so she's staying right at 1.7lbs.

please say prayers that she keeps doing so good and that she starts gaining weight and tolerates the feedings.