I know I freak out to easy with the things going on with Delilah but it’s very hard to deal with some of the stuff they tell you is going on. I called this am to see if they got the cultures back so we know what the infection is, (which that hasn’t come back yet) but I was told Delilah had food coming out her nose and mouth. This has never happened with her before so it worries me a lot. She has a feeding tube into her mouth and she did not pull it out and yes that happens, again not with her though lol so I am waiting on rounds to get done so I can call back and see if anything has changed. She has her events a lot more towards the end of her feedings which is when the spitting up happened this morning.
Now Aria on the other hand that little crazy girl pulled her feeding tube out many times while in the NICU, and once she got home she would have formula coming out of her mouth and nose while she slept. Only for me though NEVER for Rick which was annoying, I would freak out thinking she was having a seizure in her sleep (Mom and J had them) all we had to do was change her formula and she was great. I hope it’s something simple with Delilah.
She has been doing so good I’m just scared she’s declining, the nurse’s and Dr.Martin think I’m crazy cause I get scared from everything going on with her but though them it’s nothing since they see worse and she shouldn’t really be where she is for her size and age. She’s an amazing little that’s for sure.
Oh one fun thing I have been dealing with since Rick has been back to work is Aria’s fits! There a blast I think they’re worse for one simple reason, I put up with them Rick never did. She throws a fit when I give her food, no matter what it is she screams and cry’s no no no nonooooo but I learned something today and it might be kind of mean. Put her butt in the high chair with the food and walk away, not out of the house or anything but ill do dishes, fold laundry you know just go about my business and not really pay attention and she stopped and ate her food. TADA I can be taught hahah!
So today Delilah weight 810 grams, 1.13lbs YAY! The echo came back clear, so no more blood clot double YAY, they changed her feedings to 10ml for an hour then off for 2 hours to hopefully give her enough time to digest her food. So far they believe the infection is just a staff infection, and the antibiotics she’s on will do the job.
So prayers this infection goes away fast and stays gone, and that it doesn’t set her back in feeding’s or weight gain.
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